Sadly I have to report that on Thursday October 13, 2016, I relapsed. My ALL was back. I was admitted into the hospital the same day. We did catch it a little earlier this go around but it is still serious. I had two options of treatment going into this mess. Blinatumomab or Car T Cell treatment, which is a clinical trial. We are choosing the Blinatumomab.
https://en.wikipedia.org/wiki/Blinatumomab
Long story short I will have a fany pack of therapy which in doctor terms isn’t chemotherapy, it is more of an immunotherapy, for 28 day of continuous drip. The first nine days of this treatment I will be in the hospital. Some of the side effects are so severe that I may end up in a coma(worse case scenario) If the nine days go well I will then be released to finish at home. After 28 days I will get a two week break. During this two week break they will pull a bone marrow biopsy. If that biopsy comes back clean I will then immediately be prepped and readied for a bone marrow transplant. The transplant in this case is the end goal. However if the blimp does not work we can always go to the Car T cell therapy. But my hope is that this works. After the first few days of crying and not handling my shit, I think I have more of it together. This sucks and after only two months off chemo to have this come back is like a punch to the dick, if I had a dick.
I will in return take up anyone who would like to offer to come and paint my toe nails up on that offer if anyone wants to offer that. They would need to bring their own nail polish remover and nail polish. Just saying, doesn’t mean you can’t have pretty toes.
Praying that the therapy works and you get the bone marrow transplant. Keep fighting and I am happy to volunteer to paint your toes, that way I can not only give you love in person, but also see your house finally.
I’ll keep you posted of my schedule. Til then, lots of prayers and love and let us know if there’s anything else we can do to help.