The doctor made some changes to my meds last week.  Switch from Bactrim to Atovaquone Suspension. She wanted to see if my counts would come back up since Bactrim does tend to suppress them.  I don’t care the AS tastes like shit and looks like neon yellow vomit.  What I do care about is the fact that it is making me feel like shit.  I have taken in it in the morning and feel nausea all day long.  Tired and napping.  More exhausted than anything else.  Just overall feeling of sick.  I haven’t taken naps since like two weeks after I came home from the hospital.  Trust me there is nothing wrong with naps.  I have to call Monday and see if we can switch the med.  I tried for four days to see if it would get any better and it just gets worse.  They want me to gain weight but all I had to eat during the day was a mini bagel, crackers, 1/2 a banana then a small dinner.  I am not going to gain weight if I can’t eat.  We will see what they say on Monday.

Just went to the doctor yesterday and so far everything is ok.  I still will need magnesium IV bags once a week but they are going to hold off until Monday labs to really see how low my level gets.  Switched some meds around.  The doctor is going to start next week to reduce my auto immune suppressant, cyclosporine.  So we will have to be on red alert for any rejection symptoms again.  It’s a scary but good thing.  Nerve racking just to have to be overly paranoid so to speak.  Still on lock down for the most part.  Getting out a bit but nothing crazy.  Still no stores.  Just out to a restaurant every now and then.  I did drive for the first time last weekend.  It was the first time since January.  It felt weird and I think I drove like a old lady overly paranoid and very slow.  Baby steps.

Okay, this may not be the case with all home health workers, but from my experience thus far, most are super creepy.  They over share, dress inappropriately or just unprofessional.  I always get the feeling that they aren’t that good either which is a little scary.  I know I have only had a so much experience with them but yikes.  I am sure there are great home health nurses but I have only experienced one where I felt comfortable.  I would almost go back to the hospital for something than trust them.  I wish that weren’t the case but sadly it is.  Hopefully not too much longer before I never have to experience them again.  Fingers crossed.