So as of last week the Car T Cell clinical trial that I was a part of is no longer an option. Another person died from brain swelling and the trial is on hold, most likely to be cancelled or take a very LONG time before they are up and running again. Although it was hard to hear this news at the same time it was a huge relief. I didn’t want to go through the side effects associated with the CAR T Cell protocol. They aren’t pretty and the majority were neurological. So this doesn’t leave me a lot of options. Basically I can take more chemo, be a part of a non FDA approved drug or switch hospitals to be a part of another immunotherapy clinical trial. Right now there are no answers though.
I get a bone marrow biopsy on Thursday and that will really dictate the direction of the conversation. It’s a lot of waiting right now. That’s it.
Oy, shoot Casey! I’m so sorry this happened, but, like you, equally relieved that that didn’t happen to you on the trial and that they took you off it. Praying that your bone marrow biopsy went well and that you get the answers you need to make your next decision. Try to hang in there and keep fighting. Definitely keeping you in our prayers and sending lots of love and hugs! <3 <3 <3 <3