Just found out that the CD 22 protocol will be outpatient, so that means for the next 28 days we will be at home. Home through the holidays, ugh it’s an amazing feeling to know that. The pharma company approved release of the drug. We start treatment as soon as the FDA approves the drug and it is sent to Northwestern, which according to our doctor she is hoping to be this week. Side effects are minimal but the biggest thing we need to watch out for is liver toxicity. After that right into transplant, which will be in patient. Ugh just having a plan in place even if it’s not the greatest for me brings me such a relief that I can’t put it into words. Just makes me feel better. I can at least plan a bit for the next 28 days. Have some sort of “normal” for a little bit longer.
Casey,That is great news!!So glad you and Ant can spend the holidays with your families!!
Sara, we did receive the cookies and they are delicious! Thank you and skip so much. Merry Christmas and have a great new year.
casey
Yay, so happy that you’ll be home for Christmas and New Years!! Go Casey go, you keep fighting and enjoy the Christmas season with your husband and family!! And so happy to hear that you’re one step closer to being on this new treatment!! Good things happening girl, and many more to come, I just know it!! 🙂 Enjoy the normalcy and, as always sending you prayers, love and hugs!! Merry Christmas and Happy New Year!! 🙂
Yay, that is awesome news!! Go Casey go, you keep fighting and enjoy the Christmas season with your husband and family!! And so happy to hear that you’re one step closer to being on this new treatment!! Good things happening girl, and many more to come, I just know it!! 🙂 Enjoy the normalcy and, as always sending you prayers, love and hugs!! Merry Christmas and Happy New Year!! 🙂