Neuro Follow Up

So good news-had my EKG sleep test follow up, they said no abnormal activity.  Which is great.  Bad news-there still is a small clot in my brain.  They said it will always be there and it would be too dangerous to try and go in and break it up because it is so small.  Fun stuff I guess.  In June/July we are going to try and come off of the anti-seizure meds.  Kind of freaks me out.  They said because of the “scar” on my brain I could have another seizure and would go back on the meds, but the first 3 weeks I would be at a higher risk.  Ugh, I could not imagine having another seizure.  It would be brutal.  Risk vs. reward.  Docs said the alternative would be to just stay on them forever, if I wanted.  I don’t know what I want at this point, but I would take a chance to see if I could come off them forever.  So I guess we will cross that bridge when we get there.

On another note.  I am still having some adverse reaction to the chemo still.  Leg cramps like a mother fucker.  That just is uncomfortable and annoying to say the least.  Nausea and headaches.  Still lighter than previously experienced but not something I want to deal with at all.  Thumbs down.

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